National Indigenous Cancer Network (NICaN) » Yarning board


Care of Indigenous people with cancer

  • 20 December 2016

    Update on study: Towards systematic monitoring of the experiences of care of Aboriginal and Torres Strait Islander people with cancer: Phase One. Menzies School of Health Research.


     


    For the last five months, Menzies School of Health Research has been doing a study about how best to monitor and improve the experiences of Aboriginal and Torres Strait Islander people who are diagnosed and treated for cancer. We have done interviews with 48 people in total, making contact with participants from four different health services and through NICaN. Eighteen of the participants are Aboriginal people affected by cancer, twenty five participants are health professionals working in the area and five participants are both health professionals and Aboriginal people affected by cancer.


     


    The study team has talked directly to Aboriginal and Torres Strait Islander people, to find out the problem areas when receiving care for cancer. The research team has talked to Aboriginal and Torres Strait Islander people affected by cancer and health professionals who work in this area about:



    • what their priorities are and

    • how their experiences of care should be measured.


    When the study is completed, it will lead to further work, which will help us ensure that the voice of Aboriginal and Torres Strait Islander peoples is included in wider research into the experiences of care of people with cancer. At the moment, most research into cancer patient's experiences of care is not capturing Aboriginal and Torres Strait Islander perspectives.


     


    The study team is currently reviewing and summarising what was said in the interviews. We will develop a plan for the next part of the study during this process and expect to be in touch with participants again for a second interview in the first few months of 2017. New participants are also eligible to join at this stage.


    Please contact Monica Green, Research Officer, Menzies School of Health Research, Charles Darwin University if you are interested. Phone 0421 236 366; Email: monica.green@menzies.edu.au.